The V Family Foundation was born from our own family’s experience with rare disease and special needs. 
 

Kelsi’s brother Christopher (Bubba)  as we call him—lives with Angelman syndrome, a rare genetic disorder, along with cerebral palsy and epilepsy.

We know how these challenges affect every part of life, from the uncertainty, emotional and financial strain, constant advocacy, and the difficulty of finding caregivers who are equipped to meet their needs. 
 

We also understand the isolation that often comes with this journey. The moments other families may not have to think much about—a holiday, a social gathering, or even just a simple day out—require extensive planning or are sometimes not even possible at all. 
 

Our mission is simple: support local families affected by rare disease and special needs, for conditions that may not get the attention or the funding they truly need.
 

This is not charity from a distance—it is personal. It’s every family like ours, we are doing this for!